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I have been suffering with cronic pain for years and just found out that its fibromyalgia. I am havin a very hard time dealing with this on my own. Nobody I know suffers from this problem (thank theLord). But I keep the pain feeing to myself because I dont want anybody to feel sorry for me or to think im constantly complaining. I just need sombpdy to talk to.

 
By W Fox on Tue, 02-14-12, 22:54

Hi and welcome! Its true that you feel isolated and lonely without having like people to talk to but if you dont let family and friends know how you are feeling and let them help it may be harder to cope with this disorder.

I tried to ignore the pain and fatigue and kept doing what I always did but each month got worse. Family and friends didnt know I was suffering and I got the feeling from them that I was just being lazy or indifferent by not going anywhere or even keeping my house clean.

After my diagnoses, I talked with all them about needing help- like grocery shopping, doing the dish's or tidying up the house. They've taken over in keeping up old traditions, like Christmas or birthday party's. They know I cant shovel the drive or take out the garbage or even go pick up my medications. But, I have their help now and it takes a lot of stress off me. Stress is the culprit in this disorder and needs to be put in check in order to feel somewhere near normal.

I hope you find some answers here and there are a lot who feel the same as you that can give good advice on how to cope or just to listen. Wishing you the best!

"Everything on the earth has a purpose, every disease a herb to cure it, and every person a mission." Mourning Dove - Salish

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By Mommyzat on Thu, 02-16-12, 18:50

Thank you so much. My family and some of my friends know what im goin thru. But I think its more my pride than anything else. My boyfriend is very helpful wen it come to some things I cant do. For right now its just in my left side. Hip,shoulder,wrist and ankle. I hurt most of the time but just recently its gotten worse in my shoulder. I know my friends and family ould help me but its hard for me to ask. I hope things get better or the pain gets better anyways. Thanks for your support hun and hope to hear back from you

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By starshine69 on Thu, 02-23-12, 14:25

Hi Mommyzat - I just joined yesterday and saw your post today. How are you? I just wanted to check in, I know it is hard to talk to other people because they just don't understand. My 18 year old daughter told me yesterday that I stress her out because I am always sick - it broke my heart and she apologized and told me she knows it's not my fault but it is really hard for people who don't have this to understand what it is like. Anyway, you are not alone and now you have a whole community of people who know exactly what you are going thru.

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By kc55 on Thu, 02-23-12, 15:15

I'm sorry you're in chronic pain. I am too and it wears you down and causes depression. If you begin to feel blue most of the time because of your pain, please talk to someone? I take depression meds every day and it helps me to deal with the pain. I've learned that its nothing to be ashamed of. I hope you find lots of good support on here...I have. Take care!

Kathy

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By Mommyzat on Thu, 02-23-12, 15:33

I do take Celexa for.my panoc dissorder. It has slowly gotten to a piont that I can deal with stress better. Wen I found out about the fibromyalgia it got me down. I have so much trouble talkin to anybody about the pain. My mother is the queen of hypocondriacts, and all of my family just has had enough with her constant complaining. I love her but its hard and thats one of the reasons I dont like to tell people how much I really hurt. I love that I have this support group and people that know what im going thru to talk to. Thank all of yall sweet people for giving me some help, support and umderstanding thru all of this.

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By lcarter66 on Thu, 02-23-12, 17:09

Welcome to our FMily!

It wasn't long ago that I was in your shoes. While I was relieved to finally know what the heck was happening to me, I was also frustrated, angry and sad. I have been very fortunate that my family and friends have supported me during this adventure! I hope I can in turn, give you the support you need.

I understand why you don't want to complain about how lousy you feel. After all, we feel lousy much of the time, and even WE get tired of hearing ourselves complain! Something that worked for my family and I was using a scale of 1 to 10. A 1 meant I was bed-ridden; 10 meant I was feeling like my old self. This allowed me to communicate how well I was feeling without having to go into detail about everything that was ailing me. It also helped them know whether or not I might be up to participating in family activities, or if I needed rest and quiet.

Feel free to come here and let us know how you're doing. We understand!

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By usedtobeingjudged on Sun, 04-15-12, 13:57

mommyzat,i hope the pain will get better soon,iam sorry i have no words of wisdom today,i feel i have failed my pain,its getting worse all thetime,i do share in the weight issues with you.my grandmother was a constant complainer too,but now shes gone and we look back i think she might have had frbro,noone knew what it was back then!now i have it,i feel sorry that no one listened to her.she was born in 1900.anyway ,lots of hugs,love and light

you cannot perceive beauty but with a serene mind

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