Im new here! nice to be here!

I asked my husband if he'd help me do research on Fibro and we share our findings. Men need to feel like they're doing something to help or they can feel helpless and that's not good for anybody!

Trust me I no the feeling I think its hard for everyone because u cant see anything wrong and after awhile u dont want to say anything because well atleast for me I feel like after a while its like old news and ppl get tierd of it I wish I new hope to make my fam understand

I have 8 grandbabies and one on the way. Two of our sons live here and their wives so there's three grandkids here and two in Texas and three in Indiana. I have been a large part of all their lives. We can drive to see the three in IN and have flown to Texas to see the other two. I said all that to say this; since I've had Fibro(it took 3 yrs to get a diagnosis) which has been about seven years now, I tried to act like everything was normal. Then three years ago I had to have shoulder surgery and HAD to slow down. It was my right shoulder and I was nearly helpless. I fell and had to have the rotator cuff repaired with second surgery four months later. I did everything and recovered after many months. Then two years ago I fell and hit my head and was unconscious when my husband found me. He's wiping the blood from my eyes. I hit the counter when I fell and busted open my right eyebrow. Then I tried to stand up. That's when we discovered my right leg was behind me. I had fallen with my foot behind me and when I landed I bent my foot under me and shattered six bones! I was completely disabled. Wheelchair the first three months with a cast. Then I wore a boot for 9 months and finally a walking shoe. I was stuck at home because I couldn't drive. I didn't drive for over a year. My son thankfully has Fridays off so he took me to every doctor appt the whole year I couldn't drive. My husband did all the cooking and laundry and my daughters-in-law took turns cleaning our house. As I started getting better I did more but I'm having so much trouble fixing the problems with my back and left leg because I hurt them by having to walk with all my weight on them for so long.
We continued to have our family dinner nights every week and everyone knew my situation. I took this opportunity to teach them about Fibro and what it means to them because I can no longer be the sole babysitter for any of the babies. I cannot babysit two days in a row because I need that day to recover. The kids are finally understanding what mom can and can not do any more. I also involved my husband in research for Fibro to make him understand and it's made a world of difference. I hope and pray the doctors will come up with better solutions for our pain. I smoke pot occasionally to help my pain and anxiety. For some reason I keep my muscles clinched all the time and I've been that way since childhood. It's like my body is always waiting for the next shoe to drop. When I was younger it wasn't so bad but the older I get the more overall pain I have. I have to tell my muscles to relax in order to go to sleep. And thank God my doctor gives me Ambien or I'd never sleep, my brain doesn't know how to stop. I'm also on Amitriptyline to help me sleep. I'm sorry I've rambled on. Just know you aren't alone and maybe we can help each other get thru the hard times and celebrate the good.
hugs, Angie

Thank you so much Angie and Vickie! hugs to you!

Ok I have to ask but did ur doc prescribe the pot and ive heard that it helps a lot of ppl to help sleep at night and to relax but wat about the risk of smoking pot is it worth it and is it doing more harm then good ?

No, I don't live in Cali so no script but I think the pot does less danger to my liver than all the damn pills these doctors put me on. It calms my anxiety and helps me to relax. I have a clinching problem and my muscles are always on 'flight or fight' so it's nice when they can relax a little bit. I don't do it all the time but it helps when I do and if I lived in Cali I would have a script for it.
hugs, Angie

You are not alone, my husband is very helpful and my teenagers try to understand, but they get frustrated because I am always sick. My fibro leaves me with a Chronic cough that can turn to pneumonia. My doc started me on Pristiq and that helped a little with the fatigue. I also take 3 percocet a day to keep the pain at a minimum. It does not take it all away, but enough so I can function. I also take benedryl at night to help me sleep. I thank my husband daily for being so kind to me. I have stopped apologizing to him, because this isn't something that I have done to myself. You are a victim of this disease, but you are also a survivor because you are talking about it and getting help. You are doing a great job.

Thank you starshine, ya with the kids its hard they r young and energetic so cant comprehend. but ya we did not do this to ourselves! this is the last thing id want! ugh....